OncoBeta launches International Registry for Non-Melanoma Skin Cancer
An observational, multicentre, international, non-interventional programme to register patients diagnosed with non-melanoma skin cancer (NMSC), to monitor treatment outcomes and patterns of care at international hospitals
23rd November 2021
Garching near Munich, Germany – OncoBeta® GmbH announces the launch of a first-of-its- kind International Registry for NMSC. The launch is a momentous achievement for OncoBeta, and the clinicians seeking to understand data-driven treatment results for NMSC. OncoBeta will be launching the Registry alongside specialist health solutions partner, Avion Medical.
The International Registry will enable real-world patient data to be collected and reviewed in order to ascertain optimal methods of treating NMSC and for these to be applied internationally. It will give the patient the opportunity to contribute feedback and record patient experiences via the OncoBeta WeBe mobile app. The International Registry also allows the clinician community to be part of a credible project and a robust platform to publish useful long-term data.
The WeBe app allows for a streamlined approach to data collection. Dr. Gerhard Dahlhoff, Medical Director at OncoBeta said “Data collection is so important for future research of NMSC, but it can be a time burden for busy healthcare professionals. The WeBe app aims to streamline the collection of important information, and allows patients to easily report quality of life data”.
An independent committee made up of leaders in the dermatology and nuclear medicine community will oversee the International Registry. Paolo Castellucci from the committee stated, “This is an important registry for the future of NMSC treatment. It will allow researchers and clinicians internationally to develop new benchmark standards of care for recommending treatment options to patients”.
One of the objectives of the registry is to collect treatment outcome data for several mainstay treatments of NMSC. This will be coupled with long term data collection that is currently limited for this type of cancer. An international registry of this kind does not currently exist, and can offer important insights as to which treatment modalities have the most positive long-term outcomes.
Medical Director for OncoBeta Australia, Dr Saima Vohra, says “Therehasnever been an opportunity like this in the NMSC space, to align the interests of healthcare professionals, and share outcomes globally. By having access to international data, we remove some of the restrictions that time and sample sizes put on research. Robust data sets give power to the international medical community to make informed decisions on how to best treat NMSC patients”.
The International Registry will complement and expand on current information held in isolated or smaller Registries and will provide details of the specific treatments of these cancers. The Registry will collect data across several disciplines fundamental to the management of NMSC.
“We are thrilled to be working with clinicians on an international scale to build rich, long-term data, which can be used to establish best practices for treating NMSC, and ultimately seek to increase quality of life for patients.” says Shannon D. Brown III, CEO at OncoBeta GmbH.